One with the Wood

Morning mantra…I don’t remember the day it started, years ago certainly, but its why is another matter. I wanted a way to define being in the moment for if I could confine it, then I could experience it. Ha!

I lost the control and kept the mantra, which doesn’t hold back: mine is to meet each moment with compassion, lovingkindness, joy, and equanimity, which is guarantee that it will happen. I’m not setting myself goals just reminding myself to open the door of each day and begin there.

Just wakening to some days is easier than others. To meet what happens after that and look to the heart and not only the face is never easy. Feelings may not be facts but they are powerful for at their core is pure energy.

Mindfulness, awareness like no other.

It helps me open that daily door, which is sometimes to a forest, rare and rich. Every day is a stroll, indoors or out, but a forest floor with sun shadows is stuff for my memory banks.

It is summertime in the Florida panhandle (although the calendar considers it spring), the humidity almost as high as the 90°+ temperatures, some of my best days.

My walking stick is wood, a live branch now fallen, stripped of bark and varnished clear, its knots remembered. I have added black rubber tips to its top and bottom, one to ground and one to grip, for ease of grasp.

My left side is weaker, so much so my left hand cannot hold the stick with any certainty but my right hand, used to leading, finds the walking stick a useful prop. Sometimes, balance looks lopsided.

I waddle and wobble, a slow stagger sometimes, but an evenness of mind and body down a forest path on a late spring morning just after sunrise is–to me–all that and lots of birdsong.

This greenway is 50 acres of forest and meadow with 12 miles of dusty sand trail but to me it is boundless, yet forests have their limits these days and are now carefully tended not to exceed. What is done is done.

I walk until I tire, reaching a picnic table made of concrete, its bench table tops painted brown for natural reasons I suppose. Still, I am grateful for such tables, as well benches, for there are days I stop briefly at each one but today, it is the second picnic table where I will stay.

Not far along, I know, but in the forest, distance ceases to matter, like time. It’s forgotten. To neither, the forest bends. Rather, it gives its all.

Regular readers of this blog may recognize the above picture of a magnificent live oak split down the middle by lightning some six or seven years ago, not even nanoseconds in its life. See how its heart has sprouted so many new lives.

In the distance, in stark contrast, stands another oak, a sentinel stripped of its bark, possibly by lightning but by life, nonetheless. At the tip of one of its limbs, I notice movement, the shape of a turkey vulture when its head switches to profile, but mostly it is one with the wood.

In awe, I watch as all else disappears.

Not even the heart of the magnificent tree, with all its new lives distracts from being one with the wood. No sound nor single thought or emotion, only nothing consumes mind and body. I am neither on the ground or in the air, only nowhere.

In some moment I return to being a human alive with the energy that animates everything rather than being one with it. Such moments never repeat, not in the same way or same place, and in some moment I became comfortable with that, just meeting the moment I am in, grateful for a day as a human being.

Silence is not the absence of something but the presence of everything” (Gordon Hempton, Ecologist).

All Right Will Never Be the Same

My primary care physician and I are having our usual conversation when she says, “If you didn’t do what you are doing, you would not be living on your own. Others would be caring for you.”

“Thank you” is all I manage to reply. There are so many facets to what she said. Later, I tell a friend who responds, “that’s so powerful.” It is indeed.

My mind’s memory reels spin, searching for July 2015, days before the surgery to decompress my spinal cord and prevent quadriplegia–this time. I’m told to stay at home and “whatever I do, don’t fall.” So, I don’t.

My stagger resembles a drunken Frankenstein’s monster and more than once, my scrambled eggs end up on the floor, as signals short-circuit. My limbs are less and less.

I meditate a lot and dream, vividly.

I am in a surgery where all the instruments, table, and equipment are white light in a brown paneled room. Dressed in a hospital gown I sit on the surgery table, legs dangling over the side. I’m not alone.

 Maurya sits next to me, also dressed in a hospital gown, legs dangling over the side. We talk about the surgery, as if she were still alive but she is not so our conversation is the sense of speech.

 “But I will make it through, right?” I remember repeating the question as she leaves, taking some of the answer with her but not all. I will go through stuff, maybe a lot, and I will be all right, but all right will never be the same.

And it hasn’t been, knowing there is no recovering only progressing, and no one, even in dreams, knows what that may mean for spinal cord and autoimmune disease.

I “do” not waste days wondering or analyzing dreams. I immerse myself in the life I have, and the more present I am the larger my world. My days are never long enough for all I want to do.

Mindfulness is not a placebo; it is awareness, raw and unfiltered. Finding the worthwhile in the seemingly worthless, like Leonard Cohen’s cracks that let in the light, imperfect in an impermanent life, one experience after another. It’s in the unexpected that I find out who I am.

This latest round of medical visits began with my driving to Georgia with a tampon up my nose. Who knew that was a thing? This is my kind of unexpected–almost expected, now.

Every three months, I see my rheumatologist and this last Tuesday, just as I was getting ready to leave, my nose began to bleed. These nosebleeds are now chronic, a side effect of Sjogren’s syndrome.

Immediately, I pinch the bridge of my nose, deciding whether I need a light(L), regular(R), or super(S). I don’t want to change tampons while I am on the road so I settle for an R. I close the red door of my apartment, turn the key in its lock, and walk to my car.

My drive takes me through Buffy St. Marie’s “Tall Trees in Georgia,” long leaf pines, sprawling live oaks, and in spring, wildflowers in the median. In winter, a steel green blanket.

By the time I reach the Macintosh Clinic, my nosebleed has stopped. The two-story, red brick building with white pillars once had another life and usually I stop to admire its architecture but on this day I’m grateful not to walk into the clinic with a tampon up my nose, although I was perfectly fine driving through 8:00 a.m. traffic.

When I tell the nurse about the nosebleed she asks, “When you were at the light, did you turn and look at people like this?” And her brown ponytail swirls from side to side as she gives me her best tampon-up-the-nose look. “I would! I’d find a cop and look straight at him!”

It is only recently I have come to know that tampons up the nose are an actual thing, medically. And on this day, I discover that my rheumatologist (and later) my primary care physician believe staring is the preferred behavior when wearing.

I tell my 90-year-old neighbor, Grace, and she, too, wants to know if I turned and looked at people. I get it, I really get it. I’m almost looking forward to the next time, for there will be one when I least expect it.

And all will be all right and all right will never be the same.

The Best Feeling Ever

I always wander home, eventually, ever surprised, once again, that no matter where I roam, I am always home. “Wherever you go, there you are.” (Jon Kabat-Zinn). The hearth of home. Joy.

Yes, joy. No, really. Joy, in all of its rejoicing, delight, exultation. The best feeling ever. It’s always there. I just don’t realize it. I get lost. Why is that?

When does home become a foreign place? It doesn’t, of course. It is I who become a stranger in a new land, when ideal replaces real. When joy becomes only a brilliant light, unsustainable. Unreal.

Joy is not a momentary flash, all show. Joy is pure prana, the energy of existing. It is home. The trappings and trimmings change but joy seeps through any moment, no matter how dark.

Joy fills the cracks of experience, pulls the pieces together and seals them with grace. That is the hearth of home, no matter how the house might appear. Within are the rooms of a lifetime. The exploration never ends.

Still, I wander from time to time, and it is in impermanence that I wander– when change arrives–I go in search of what is gone but don’t yet accept. It is a fool’s errand but I go anyway.

Once I realize I have been running, I stop. That’s the easy part. It is at home that I am face-to-face with the change that sent me running. At a glance, it is minimal. New disc herniation at the base of my neck, a gnawing stomach in protest of ongoing chemical intake. Low sodium and fluid retention issues, maybe heart involvement.

The leitmotif of autoimmune-spinal cord disease, ever involving all of the body. Any newness wears off as soon as it is discovered. Where is the joy? Nothingness, groundlessness, may warm the cockles of my Zen heart but my humanness cannot help but hold cold.

No, I do not feel joy in this moment. I have to trust it is there, nothing more and nothing less, as I pick up the pieces, restructure my home, shake up one routine after another. Rearrangement, new structure.

It is very like a jigsaw puzzle. I know what the picture looks like. That doesn’t change. It’s the rearrangement of the pieces, the energy of grace, that gives me shape. I sink into my surroundings, the room that I occupy more than any other.

It’s comfortable here, my hearth of home, and every time I return I wonder why I ever left. My electric, adjustable queen-size bed, room enough for notes, naps, food, and stand for my desktop keyboard. The comfort eases the ache of arthritic joints, supports my spine and damaged spinal cord. Sturdy and soft, I am ever grateful for home.

From here, I reach out to the world and it calls back. Connection, the experiences of a lifetime. Easy to shut down but in absence, connection changes. Impermanence is inevitable; it does not pause because I do. Easier to stay connected, experience after experience, no matter what.

All of us have only our kind of love to give but I wonder if we know it’s invaluable, pure joy, light no matter what. Life is not limited to one lens, one look, one way. Maybe that’s what I find most difficult.

I don’t want to sit in the eye of any storm anymore because I know to come through is to be changed. That is the way of life in this dimension. It’s not so much what I lose or who I no longer am. Not anymore. It is change itself. That’s new.

A voice from within welcomes me to aging, which I cannot escape, either. There is a lilt to the voice that I recognize as joy and the grace of experience. They whisper trust, and I do. After all, they are always with me.

The caverns of my mind go dark but not completely. There are cracks in every experience. It is the light that wins, as a friend told me, which is not to say living in the light is ever easy. It’s not, nor is it meant to be.

For most of the last six weeks, friends have kept me busy, some on Words with Friends. Slivers of light, both friends and words. It was not writing but it was words. And a blog post here and there. No thing and no one ever stays but each is an experience, all mine.

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Each time in my wandering, I wonder if I will continue to write. There will come such a day when I won’t, and it is closer. It surprises me that I accept that so readily but I do. With each illness flare-up, I am less, physically. Winter is hard, even a Florida winter without a “snow event.”

A corneal abrasion in my left eye shut down my sight for a while. Corneal abrasions are common but this one occurred in a mishap at a vision clinic and nothing about this incident stayed in the realm of the usual.

Never one to stray far from the written word, I listened to audiobooks, fiction and non. In reading Fire and Fury, I was reminded of what it is to sit through yet another storm of our collective chaos but unless we immerse ourselves in this experience, we will never move through it. The longer we look away, the harder it will be to face who we are.

And in that, I find my way home, again, replete with new life lens, healed corneal abrasion, and if not new vision at least light enough to string together sentences, keep connections, and find ones anew. Still others yet to discover.

Everywhere I go, there I am.

Thanks to Leonard Huber for the Seattle area traffic images, both light and dark.

 

 

 

Inside Hopelessness Is a Bit of Badass

What I return to, time and again, is the sliver of hope slipped inside hopelessness. It’s so easy to miss–it’s like a well-kept secret–for without hope, hopelessness does not exist. That is so badass.

I, as a sexagenarian, have this conversation regularly with my neighbors. Some are my age but most are septuagenarian and octogenarian. I don’t gain much ground until I remind them about “badass.”

That always brings a smile. It’s a generational thing as to why they grin. I have to cite the Urban Dictionary to remind them badass is a good thing, a powerful, authentic, compassionate way of life. But I know it’s the word “badass” that takes hold as hopelessness finds itself at the curb, albeit momentarily.

A sliver of light lives in unlikely places, no matter how long the darkness lingers or how immense its presence. It is not like hope belongs to only one generation at a time. With historic eyes, hope transcends.

Badass is not an easy sell at any time. Some days, being badass means the right thing to do is way too hard. Being aware is not easy in an existence that is ever-changing. It’s not easy living from the inside out.

Being badass means meeting the storm, knowing that loss looms, accepting all escape routes lead back to the beginning. The only way through is forward. Life gives us hopelessness and within it, hope.

I have learned to lose myself in the rage of hopelessness’ storm. That takes a few badass turns of thought, believe me, but being in its storm is the only way to center myself, to sit in its eye, the hope in hopelessness.

To watch a warbler arrive. My barren landscape brighten with yellow and black, breaking through my black-gray fog. I get a glimpse of the world going on around me, as it should, for no storm is everywhere.

Nor does the winter warbler stay. It is mine to find my way to the self that is still. That journey is never the same nor should it be. It would be pointless to go through a storm and not be changed.

I don’t think it’s a matter of the storm’s rage, although I cannot say I am not affected by its ferocity. I’m just not there to do battle. I let the storm exhaust itself. Rage will do that, when left alone.

And the body adjusts to the ravage that is any disease but it does have a special appreciation for rest in any storm’s aftermath. Being has been through yet another storm and will never be quite the same.

On any day, the body delivers all it has to offer. That may be the best definition of badass yet.

*Badass note:  I’m being quite selective in my definition of badass here, confining it to ethical, authentic, and compassionate behavior. The Urban Dictionary provides alternatives here. 

My Own Bit of Buddha Nature

Pre-spinal fusion surgery, I described my gait as ”a drunken Frankenstein.” My neurosurgeon thought it apt.

Subsequent surgery and yoga have improved my walk considerably but my gait is still ”spastic” so there remains a bit of Frankenstein about me and always will. My body is not in synch.

Both hip replacements are great but my spinal cord is damaged from prolonged pinching. I’m among the 70% who show improvement. Still, I stagger sometimes, clumsy comes easily.

My neurologist explains it as residual from the cervical fusion, nothing monstrous, merely minimal–that which could not be restored–so less is better.

Body hardware strengthens sensation–works with the residual–what remains after the damage has been repaired. With less I learn to do more with foreign body parts. That’s as good as it gets.

And that’s the way I live, in an apartment of two rooms–living area/kitchen and bedroom–with a shower/bathroom. Even a full Frankenstein can maneuver here.

And isn’t that what being alive is all about?  Learning to live in the skin we are in and then go exploring. For a time, walking my apartment with a slight stagger is sufficient.

Always, there is writing but with limitations.

There is not enough sensation in my fingers for actual typing. This has been true for the last two and a half years. In this regard, surgery provided no improvement, no change.

What remains is tingling/numbness in my arms and hands, all fingers and both thumbs affected. Yet, what does not change can be good news and in my case, it is.  No healing is possible so maintaining what I have is the goal, and that I am doing.

I’ve been using speech recognition regularly but speaking the written word is not the same as typing it. Sounds silly but the thought process is different, completely different.

For me, editing speech recognition is slow going. My brain commands my fingers–hunt and peck–but the keys they stroke seem to be their decisions alone.

Even so, I am book-building now, which limits the number of my blog posts but blogging is an integral part of my life, especially as I found myself becoming a bit of a Frankenstein.

How that happened is all here on this blog so I continue to post, from time to time. It’s comfortable here. I hope for you, too.

I am excited about this book because it is not like anything I have attempted before. There is a freshness in it. Like the residual that is me, much remains to be explored. And so, I am.

My one bedroom apartment is not the world, no matter how much the Internet introduces. Ironically, it is the online world that opens me to what is outside my door.

Quickly, I go nowhere without a walker but not the orthopedic wonders forced upon me after each surgery.  Companions they may be– to take me from one seat to another–but they are not friends, not wheels to the world.

I find my walker on the Internet, after much research, and I admit to hubris when it comes to the uniqueness of my wheels. So far, I have seen no other like it.

It feels more a motorcycle than a legged triangle on wheels with grocery basket and backpack. Silver handlebars bars with black, bike-like grips, it offers no seat but three gravel-gray wheels thick enough for trails, if I am careful, and I am.

I can zoom around people, snake though grocery store aisles. My mobility startles shoppers; free-wheeling I call it. Not my best moments, admittedly, but disability does not mean I walk with saints.

My walker may be my own bit of Buddha nature, my constant in the chaos. It is wheels for life–mine–as good as it gets.

Survey Says…

Living on a fixed income can confine–no doubt about that–my budget is the same bottom-line every month but cost overflows require a constant balancing act.

So, I have been looking for ways to supplement my income. While costs will ever be fluid, I need to work within my current frame of life, which includes aging and chronic illness.

It is not that my current frame is without flexibility for it is not. Neither chronic illness nor aging confine but both, too, have a budget. To overrun either is to exact a cost on myself that is rarely made up next month or in this lifetime.

When life expands, so does its frame but it has to be life doing the expanding rather than egomania or placing myself within a frame that does not fit.

So, I started taking online surveys for payment–in cents, usually. The best surveys pay a dollar or two and some up to five but these are not the usual fare.

I’m conscientious in my work–surveys interest me–I’m curious what others measure. The surveys also mirror my own living within the frame that is my life.

Specifically, my experience as an aging, disabled woman living in Florida. Any one of those labels will disqualify me and frequently does. This is also true if I choose the label retired.

Often, my own blend of chronic illness is too rare (or too common) to warrant a survey but diabetes, hypertension, and cholesterol seem to be current hot topics for surveys.

But my label bias is showing. For me, labels are difficult, a lifelong issue, but I do recognize their importance in providing context.

And although I have not been in contact with anyone else who participates in these surveys, I suspect they, too, find themselves disqualified for their own group of labels.

I don’t want to get worked up about labels, which I am wont to do.

The surveys that I am offered most frequently have to do with gaming videos, although I do not own an Xbox or virtual reality equipment. I’m not into role-playing games, either.

I am, however, fascinated with strategy/puzzle games, mysteries mostly, forcing me to focus on the story’s task at hand. Similar to reading, I am immersed in a story that is not mine. Freely, I admit to this escape.

These games help me find the way through my fog, when my brain is more mush than matter. Now, I have surveys, too–similar but not the same–it is the absence of story that sets the two apart, I think.

Surveys end–happily or no–while at game’s end, these “mysteries” reveal a successful strategy. On some days, that is a better use of my time.

Of course, there are surveys I reject outright but I admit I am most careful with the qualifying questions, if the promised payment is larger. I, too, have my mouse and cheese moments.

Always, the mouse runs the maze for cheese, seeking at least the regular fare but a larger reward is even better. Any extra effort is only a problem when the reward is denied without explanation or is less than promised.

If I value my time in terms of dollars and cents–within this context–I am well on the way to passing our national debt, maybe as soon as the end of next week.

It’s not that I don’t value my time–I do–but in my current frame, these surveys add more than the time they take. Again, it’s context.

No matter how bad a day is for me, physically or emotionally, I find enough brain cells for surveys, not because they are witless but because they help me find the way to mine.

I am not caught up in the ego of discomfort or frustration. Rather, I am in life as it is–with my pain. It sits with me. I sit with it. I learn something.

Every day is not a jackpot, and every day what I want will not fit within my frame but every day, I have my space. It is enough.

Why chase cheese if it is not on the day’s menu?

Aiming for Even…With Wheels

Musing CatEvery post that appears on this blog bears little resemblance to its initial version. In life, there are best laid plans and then there is what happens.

However, this post is different than any previous, not in substance but in laying out a plan, making a commitment. That’s a bit risky for one who lives life from the eye of a storm more often than not.

My roundabout way is beginning to resemble clickbait so here’s my plan: I created another blog, aimforeven.com, featuring short posts–daily doses I call them–on living life with equanimity. It is a sister blog to this one.

I have given this much thought over the past two years but explaining this commitment remains difficult. And Zen Buddhism isn’t much on explaining. But this I know. Aim for Even rests so comfortably in my heart and so anxiously in my head.

There is nothing for it except to begin, as if there were another way.

Aimforeven.com is a number of moments–365–strung together as a series of blog posts in a cumulative year of days, if not consecutive. I’m working with the reality I have and aiming for even.

My view is from within the eye of a health storm that has waxed and waned for the last 384 days, more or less. Waves of impermanence do not count the days coming or going.

For that matter, days are not what they used to be for me, either, but I have not lost track. If anything, I’m more aware of each day’s presence, even if I don’t always get the order correct.

With each wave comes an awareness not yet imagined. It is mine for the viewing, if I will only look.

To sit within the eye of the storm is to witness the surge sweeping away life options while leaving possibilities never considered or usually rejected.

The current storm is swirling around advanced, late-stage osteoarthritis in both my hips. It is early days in this storm but so far autoimmune disease seems subdued, spinal cord weakness waxes and wanes.

It is the storm clouds of degenerative disc disease that thunder, threatening then throwing lightning surges up and down my legs. Within, rage ultimately gives way to stillness.

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It is such an effort to begin again. And I’m tired, really tired.

Within every storm is a sliver of light, and this storm is no different, if I will only look through the life lens. Perhaps it is my fatigue that reveals the world anew this time. I’m never sure what does; I just know it always happens.

Regardless, it takes a while to get used to viewing the forever changed. And there is always some sort of surprise awaiting me.

This time, it is “wheels” to access more of the world around me. Regular errands and daily tasks are easier. I may not have more energy but I am not so tired, either.

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This storm is far from over but I take in the view of what other options await me.

In the past, my mind set sail for Aim for Even only to travel off course or simply shipwreck in one convergence after another of my personal, perfect storm.

What is in one’s mind is not always within the life lens of experience. It has taken me a while to explore the view I have rather than search for the one I want.

Now, aimforeven.com is within my scope, equanimity in daily doses, a steady course through any storm. After all, no storm is without an eye with a view.

No day or dose is ever the same, even if the aim is. An evenness of mind opens not to expectation but to experience. Equanimity knows no enemies.

That is the course for a year of days on aimforeven.com.

Certainly, the posts are a way for me to reconnect with my online life. Just as my “wheels” allow me access to the world surrounding me, blogging connects me to the immediacy of the virtual world. I have missed both.

Join me on aimforeven.com for a year of equanimity. Stop by KM Huber’s blog for longer observations, the usual fare perhaps a bit more regularly. Each blog site features a sidebar link. After all, they sail within sight of one another.
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