Always a Nasty Woman

I scroll screens by night and have been since November 8, 2016. It is how I first learned of the Nasty Women Project.

Arguably, many believe I am and have been a nasty woman all my life–in every sense of the term–I’m not disputing that. 😉 I am also a citizen in a republic whose duty is to be vigilant but I admit to complacency.

I’m on duty now. That’s all I can do anything about.

I contact members of Congress–someday, maybe I’ll be able to attend a town hall meeting—until then, I read newspapers and books like Ruth Bader Ginsburg’s My Own Words and Ron Chernow’s Hamilton.

#TheResistance is not about going back–that world is gone–it is about working through this moment. Yet, the past is not without its information.

Sometime around last Christmas, editor-in-chief Erin Passons put out a submissions call for a book she wanted to publish March 1–an anthology about the effects of November 8, the night the world changed.

I knew I would submit a piece but I had no idea my essay would begin 18 years ago–1998–on the day of Matthew Shepard’s funeral. Then, I was a middle-aged lesbian living in Wyoming. I was angry and too naïve to be afraid. I believed hate would not win but on that day, it did.

Members of the Westboro Baptist Church gained worldwide attention for their protest of Matthew Shepard’s funeral. I joined others in holding up my umbrella to block the signs of Matt in hell and God hates fags.

Our umbrellas sagged under the weight of snowflakes. I looked into the eyes of a young man from Westboro and found the hollowness of hate. He had won.

These 18–now 19 years later–I know winning is not when the heart is hollow.

My essay, “Confessions of a Closet Activist,” appears in the Nasty Women Project: Voices from the Resistance, Volume 1. 80 women, 80 stories of what it means to be a woman in the 21st century. 100% of the profits go to Planned Parenthood.

In the first two weeks, we raised over $2500 for Planned Parenthood. Our support continues no matter what Congress decides about healthcare, on any week. The attack on Planned Parenthood is a long and familiar one.

For me, it goes as far back as 1976. It is not impossible to be pro-choice and anti-abortion. Human beings are “walking contradictions.” There is no one way for everyone but for everyone there is a way.

Complacency is easier than activism. I’ve always known that but I’ve not always been aware of the privilege I have. As an old, white lesbian, it is considerable.

We all have privilege. It is not something new but an awareness of who we are, how we intersect with everyone else. We live in a republic whose survival means we must participate–always.

The failure of the healthcare bill shows us we are still able to make a difference. We are not yet staring down the hollowness of hate but we are not far from it, either.

Sometimes we see the danger and it kills us—

and sometimes we see the danger and it sets us free.

(“I Saved the World Every Night,” Erin Passons)

I scroll screens by night.

 

The Long View On the Small Stuff

Increasingly, curiosity gets me through difficult moments, especially when equanimity seems impossible or at least incredibly difficult.

I start with the small stuff. Like when I begin my day. That may be at 4 AM or 10 AM. The issue is not the clock but that my day begins. There was a time that if I had not meditated or completed my yoga practice by a certain time, my day was doomed.

Who knows what I missed on all those “doomed” days.

Some time ago, I began practicing “a routine of no routine.” I had no idea what that might mean but I decided to let curiosity lead–no matter what.

Working with the day I have and not the day I planned is as much a discipline as is meditation and yoga. More often than not, I accomplish more. Rescheduling is less necessary. I open myself to different ways of accomplishing a task.

Curiosity gives me that creativity. And it requires my complete presence. It is more than not pouring coffee in my oatmeal. It is appreciating that preparing coffee and oatmeal is each its task.

Staying within the frame of my day—each moment its own scene–keeps me from being daunted by the obstacle that is that day’s path. Mine is not to ignore but to immerse myself in the experience.

It is the small stuff that enlarges my awareness.

I think less and complete more. Even when revelation drops in, I do not attach to it. I notice but I do not engage. Revelation, like every other thought, returns.

There was a time—not long ago–I would have rushed to capture revelation on screen or with a recorder. Who knows what would’ve become of my coffee or the oatmeal.

I was so afraid of losing the brilliance of one thought who knows how many others passed. Each in its time.

So, yes, it’s the small stuff even in days of cold sunshine. For me, these are days when the temperature is low and there is a stiff breeze. There is so much light but it is a cold one.

Physically, it is difficult. I am immediately aware that the roller coaster is mine to ride or not. I can rage or sink into the slough of despond. I aim for somewhere between the two.

Sometimes, I skate on the slough, my mind frozen in attachment. A solitary thought plays over and over as the ego skates freely on the mind that is fatigued. Still, time thaws all thought, no matter how dark.

It is the way of life on this planet, in this physical dimension, that we know darkness. I’m not sure that’s without its purpose. Each day ends in darkness only to dawn again. It is not all light all at once.

For me, a sliver is sufficient. There is just enough joy in it. Like light, not much is needed. As Brene Brown says, “Joy, collected over time, fuels resilience.”

Joy is a peaceful resistance to any action that adds pain and suffering anywhere to anyone including me. When I learn through joy, I cease to struggle (Sarah Ban Breathnach ).

Pema Chödrön says trusting in our “fresh, unbiased nature” is all we need to do.

At the beginning joy is just a feeling

that our own situation is workable.

We stop looking for a

more suitable place to be.

(The Places That Scare You, Chödrön, 2009)

When we work with the reality we have, we find the extraordinary in the ordinary. It takes practice. Start with the small stuff. Trust your gut.

The Case for Chaos

Increasingly, I choose chaos over suffering. It’s a conscious act, one I have come to know as sitting in the seat of Zen.

The Buddha taught suffering and ending suffering. There’s no avoiding pain. It is integral to the life experience. How I deal with pain determines whether I suffer.

This is usually where chaos ensues. 🙂

Pain arrives like any other experience, a visit from the unknown. If I sit in the seat of Zen, I am without expectation, open to what is being offered. Welcome or unwelcome, the experience changes me.

It is not the nature of life to suffer. Pain is only one experience and like all every other one, it is merely passing through. No one experience frames a life unless we do not let go.

Being chronically ill offers me various levels of pain but sitting in the seat of Zen offers me a life lens to adjust to whatever light is present in varying perspective.

I have demanded much of my body. It has responded beyond my wildest expectations, often adjusting in ways I am late to discover but become aware of nonetheless.

As Anne Lamont said, grace finds us in one state and leaves us in another. It strips us to our core—revealing us as we are, transforming us from what we were. It is the heart that must make the mind bold to life anew, and somehow, it always does.

This past week, I visited my neurologist who advised that while there is no improvement in my cervical spondylotic myelopathy, there is no change, either.

The tingling in my fingers will not subside nor will sensation replace numbness in my hands.

I’ve known this since the cervical fusion failed in 2015 but to know and to bear are often different worlds.

I may be able to push my fist through a wave of impermanence but I will still be knocked to the ground. And there is no out running the wave—ever. Mine is to be, to experience.

Hollow comfort that when fear is in abundance but I don’t have to be fearless, just a little bit curious, that is sliver of light enough.

What now for my hands and arms? The answer is what it has always been, world-building “around the tiniest of touches” (Carol Rifka Brunt).

I have a reverence for the capabilities of the “opposable thumb,” probably because my thumbs feel more in opposition than opposable. Yet, there remain possibilities.

If I ignore the “tiniest touches,” I will drop the plate or the egg. I must be completely present to my task. Less focus is required in lifting my collapsible walker in and out of my car. In gripping the walker, tingling streams through my hands, the “tiniest of touches.”

I no longer wrap my mind around that one moment when all life will seem in balance. I once worked toward such a freeze-frame but it left me lacking. In all the imperfection of impermanence, I would rather its wave.

How easy it is to forget that we are world builders–our one life experience so chaotic, so full of grace.

Sitting Silence

In times of loss, I have always gone silent. To me, silence has always been a response but it is only in these later years that I learned to sit silence as a response to loss.  watching 0314

Certainly, silence has been my only response on this blog for well over three months. Almost daily, I posted on Aim for Even. There was the interruption from hurricane Hermine, and there was the first of two hip replacement surgeries.

The surgery went extraordinarily well but the patient lost a way of life, totally unexpected. Loss is often evident to everyone around us before we meet it face-to-face.

And so it was for me with feline EmmaRose. She appeared frequently on this blog, and while she lives still, she lives elsewhere.

My hospital stay revealed that I was no longer able to care for EmmaRose even beyond my recovery from hip replacement surgery. More and more, autoimmune disease dictates what is possible for me. In this case, accompanying anemia keeps my energy level quite low.

This partnership of autoimmune disease and anemia has been affecting my life for some time—quite seriously—yet I chose not to hear what my rheumatologist was telling me. Neither did I sit silence for counsel. Rather, I ignored or reinterpreted every medical pronouncement, an old behavior of mine. Emma meditating 0313

Only in losing EmmaRose did I sit silence. I knew the right thing to do and did it but the right thing is always so hard to do.

Is that because I ignored my intuition, my “gut,” until I could no longer deny it? Or is it because doing the right thing always asks something of me that I don’t want to do.

Good questions, and I will ask them all my life. The answers are time sensitive but the questions are eternal. They allow me to see me as I am; always, it is revealing.  

I sit silence, all eyes and ears.

And if I am fortunate, a bit of magic shows itself. I have never doubted the presence of magic. It stays hidden in plain sight, its last protection. As fast as this world whirrs, magic is missed.

So often, we chase what we will never catch. Where is the magic in that? As a believer, I tell you that once you have walked through a magic portal, you will never forget the experience.

Some years ago, I discovered an animal sanctuary, deep in the Florida forest. It is not a rescue or a Humane Society but a farm for medically needy animals to live out their lives in a family setting.

If it sounds idyllic, it isn’t, and to me, that’s what makes it perfect. Not too long ago, I was an administrative volunteer for this sanctuary because its mission is like no other. There are no paid staff and there are two veterinarians on site. And yes, it exists entirely on donations.

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Magic always wends its way.

So, EmmaRose, now medically needy herself, returned to where she once lived. Daily, a little girl sings to “her best kitty ever,” as a family helps EmmaRose adjust, again, to life on the farm. At the very least, the scent is familiar as is the love.

And I cry but my tears are more for the joy of the years we knew than for the years we will not know. Love always overflows loss.

No matter how dark the moment, there is always a sliver of light. If I sit silence, the world cracks open just a bit.

I no longer focus on the future, what I may or may not experience. The only life I know is the current moment. It has my complete attention. Even without death, some lives leave us. We never know when we must let go, when we must change.

Sitting silence is immersing myself in the experience of being alive, raw and unfiltered, whether it’s the loss of health or doing the right thing for EmmaRose.

I know that each loss reveals its worth in its own time. And then there is the magic. If I sit silence, I will not miss it. I will not go whirring by.  

Aiming for Even…With Wheels

Musing CatEvery post that appears on this blog bears little resemblance to its initial version. In life, there are best laid plans and then there is what happens.

However, this post is different than any previous, not in substance but in laying out a plan, making a commitment. That’s a bit risky for one who lives life from the eye of a storm more often than not.

My roundabout way is beginning to resemble clickbait so here’s my plan: I created another blog, aimforeven.com, featuring short posts–daily doses I call them–on living life with equanimity. It is a sister blog to this one.

I have given this much thought over the past two years but explaining this commitment remains difficult. And Zen Buddhism isn’t much on explaining. But this I know. Aim for Even rests so comfortably in my heart and so anxiously in my head.

There is nothing for it except to begin, as if there were another way.

Aimforeven.com is a number of moments–365–strung together as a series of blog posts in a cumulative year of days, if not consecutive. I’m working with the reality I have and aiming for even.

My view is from within the eye of a health storm that has waxed and waned for the last 384 days, more or less. Waves of impermanence do not count the days coming or going.

For that matter, days are not what they used to be for me, either, but I have not lost track. If anything, I’m more aware of each day’s presence, even if I don’t always get the order correct.

With each wave comes an awareness not yet imagined. It is mine for the viewing, if I will only look.

To sit within the eye of the storm is to witness the surge sweeping away life options while leaving possibilities never considered or usually rejected.

The current storm is swirling around advanced, late-stage osteoarthritis in both my hips. It is early days in this storm but so far autoimmune disease seems subdued, spinal cord weakness waxes and wanes.

It is the storm clouds of degenerative disc disease that thunder, threatening then throwing lightning surges up and down my legs. Within, rage ultimately gives way to stillness.

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It is such an effort to begin again. And I’m tired, really tired.

Within every storm is a sliver of light, and this storm is no different, if I will only look through the life lens. Perhaps it is my fatigue that reveals the world anew this time. I’m never sure what does; I just know it always happens.

Regardless, it takes a while to get used to viewing the forever changed. And there is always some sort of surprise awaiting me.

This time, it is “wheels” to access more of the world around me. Regular errands and daily tasks are easier. I may not have more energy but I am not so tired, either.

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This storm is far from over but I take in the view of what other options await me.

In the past, my mind set sail for Aim for Even only to travel off course or simply shipwreck in one convergence after another of my personal, perfect storm.

What is in one’s mind is not always within the life lens of experience. It has taken me a while to explore the view I have rather than search for the one I want.

Now, aimforeven.com is within my scope, equanimity in daily doses, a steady course through any storm. After all, no storm is without an eye with a view.

No day or dose is ever the same, even if the aim is. An evenness of mind opens not to expectation but to experience. Equanimity knows no enemies.

That is the course for a year of days on aimforeven.com.

Certainly, the posts are a way for me to reconnect with my online life. Just as my “wheels” allow me access to the world surrounding me, blogging connects me to the immediacy of the virtual world. I have missed both.

Join me on aimforeven.com for a year of equanimity. Stop by KM Huber’s blog for longer observations, the usual fare perhaps a bit more regularly. Each blog site features a sidebar link. After all, they sail within sight of one another.
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Reflections on a Seesaw

“Maybe, maybe not” is a phrase I’ve carried with me since first reading Robert Fulghum’s Maybe Maybe Not: (Second Thoughts from a Secret Life). If memory serves, Fulghum focuses on the certainty that anything can happen. In maybe (and maybe not as well), lies the wonder of certainty.

Some 20 years later, I still do not disagree. After all, existence is ever-evolving, never given to any absolute except change. For me, certainty lies in change.

Maybe this is hair-splitting, maybe not.

It is only recently I realized that “maybe, maybe not” is my catchphrase for equanimity. I do not know when that happened but it did. There is an evenness of mind in the seesaw quality of “maybe, maybe not”—at least for me–an ongoing balancing act in meeting life’s experiences.Winds of Change 0214

As Pema Chodron says, “cultivating equanimity is a work in progress.” Indeed, it is. Yet, I find a kind of certainty in creating an environment of equanimity. If anything is certain, it is change; perhaps that is the permanence in impermanence.

Maybe impermanence is the heart of Fulghum’s belief in wonder for no thing ever stays and anything can happen. Maybe, maybe not.

Cultivating equanimity means we respond rather than react to the emotional and physical storms that make up the drama of our lives. If we meet the storms with an evenness of mind, we learn the nature of our pain.Storm Clouds 081913

To open one’s self to the fury of any storm—to sit in its eye–is to accept the promise of impermanence, the certainty of change. In acceptance comes the realization that one’s life changes forever. No storm is without its pain yet every storm has its eye.

I am reminded of the Buddha’s words, “I teach nothing but suffering and the end of suffering.” For me, equanimity provides the evenness of mind to accept that pain will always be part of the life experience. But I do not have to suffer. The choice is mine.

We suffer when we are becalmed, wrapped up in our pain, wearing it as our identity. In aversion, we also suffer, trying to outrun or outmaneuver the storm— we may actually do more than once — regardless, we will meet it again, may be different circumstances and perhaps when least expected.

In equanimity, we brave the storm, accepting it will forever change us. We sit in its eye, safe in knowing the storm state always passes, and in its aftermath, we rise once again, buoyed by the energy of existence.

With every storm, there are lands lost to us, yes, but if we sail with the current—an evenness of mind— there are so many new shores to explore, so many experiences yet to come. There is always another sea to sail.

And all the while there is the wonder of maybe, maybe not, a seesaw balancing act, certain to change.

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Looking Through the Lens of Limitation

Looking within 0213For nearly four decades, I viewed disability through a lens of limitation. For me, that shutter had only two settings, open or closed, a.k.a. able or disabled.

Some years, I fully embraced the label of disability, assuming it as my identity. And then better health would return. Always, I believed the return permanent, and it never was.

My ego had this to say: “You are better and can do more so do it.” No matter the state of my health, I believed my ego. Sheer stubbornness prevailed more often than not. Yet, disease processes can only be suppressed for so long.

My ego was not without an opinion on poor health, either. “You can get better. You have before. So do it.” Sometimes, remission lasted for years but always, disability returned.

All the while I was struggling with the disability label, I kept accumulating medical diagnoses. I gave them little notice other than to put them in a neat stack for later consideration, which I never did.

Rather, I rode the roller coaster of disability as if it were the only experience of my life. Until one day, not too long ago, I got off. No more struggling to rise only to rush back down. No matter how long it took to climb up, the trip to the bottom never lasted long enough.

The Pause of Life 101313

Undoubtedly, my ego had an opinion but I did not listen. Rather, I followed my instincts: why not float upon impermanence? Stay open to experience. Meet it with curiosity. Impermanence will take you on the ride of your life.

And then the bottom fell out, as I wrote in my last post almost three months ago. I’m still afloat, which is not easier than riding on a roller coaster just different. I sail with the current rather than setting a course for lands lost or for shores beyond my reach.

I discover myriad angles in the ever widening lens of impermanence, even if the dawning day is dark. Always, there is a sliver of light, and if I’m mindful, I will discover it.

Familiar disease labels are never far off but I do not seek them out or try to steer away. They will find me, and I will meet what they have to offer. Just recently I added a new label, rheumatoid arthritis. It offers yet another perspective on the Zen koan, “The obstacle is the path.”

I stay the course, scanning dark skies for the inevitable sliver of light.

Autoimmune disease— lupus, Sjogren’s, and rheumatoid arthritis— are quite active currently as is spinal cord disease (myelopathy). Working with degenerative disc disease, myelopathy has permanently affected my gait (ataxia) as well as the reflexes in my limbs (hyperreflexia).

Each label is its own lens of limitation. To attach to a label or to avoid it will not change the experience it brings. Labels float in and out of life. I aim to let them do just that.

The C2-C4 donor bone fusion is still “not taking” but “my films look good” my neurosurgeon tells me. The fusion hardware holding the donor bone in place can last as long as 10 years. Even autoimmune disease is doing its part as it provides more than enough inflammation to assist the fusion process. My neurosurgeon remains optimistic and so do I.

Sliver of light in a sea of labels.

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All of my medical practitioners support my daily, gentle yoga practice, no matter the disease experience of the moment. Not every day am I able to perform each yoga pose completely but every day I practice yoga.

In yoga and meditation, there is only the lens of impermanence, a mindset of acceptance that no thing ever stays or is ever the same, no matter how many times met. I agree to medications that I once rejected: a weekly dose of methotrexate and a small, daily dose of prednisone. The methotrexate requires monthly blood test monitoring.

Inflammation may be assisting the donor bone fusion but it is damaging my joints and tissues. Accepting the medication is as essential to maintaining my independence as are yoga and meditation. In an open-ended mindset, labels pass freely.

In every moment there is movement, a breathing in only to let go.

As in meditation, the breath in yoga is critical to sensing the body’s signals.  With my breath I soften the pain of movement, all the while experiencing its energy. Every day is a new communication with the body, no matter how many yoga poses I complete or how long I meditate.

Even on those days when there is only a sliver of light, the impermanence of each experience is worth the ride. After all, I am looking through an ever widening lens with myriad angles.

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